AHC Europe
Alternating Hemiplegia of Childhood is a rare neurological disorder caused by a de novo mutation in a gene
The most commonly mutated gene is ATP1A3
About us
AHC Europe hope is to be able to connect with all European AHC organisations and ensure that no AHC family in a European country without an official AHC organisation feels isolated.
AHC Europe members
The AHC Europe was established in 2013 by 10 European AHC Associations
Become a Member
If you are an association or organisation in Europe and not featured above and would like to be present as a member – please get in touch with us at [email protected]
Blog
AHC Europe Holds First Thematic Meeting on “Connecting Families”
On 24 March 2026, AHC Europe hosted its first Thematic Meeting, bringing together representatives from...
Advancing Clinical Knowledge of AHC & ATP1A3-Related Syndromes
Alternating Hemiplegia of Childhood (AHC) requires a precise diagnosis and specialised care. To bridge...
Sunna Valdís turns 20
On 9 February, Sunna Valdís turned 20, a milestone that once seemed impossible. As the only person in...